Your Genes, Your Health

www.ygyh.org

Your Genes, Your Health

www.ygyh.org

The Josiah Macy, Jr., Foundation funded Your Genes, Your Health (YGYH), the companion site to DNA from the Beginning. YGYH is targeted at patients and families who are looking for easy-to-understand information about a specific genetic disorder. Information for each disorder is organized according to questions visitors may have about the disorder: What is it? What causes it? How is it inherited? How is it diagnosed? How is it treated? What is it like to have it? Where can I get more information?

The site focuses on 15 disorders, which were chosen using three criteria: high incidence rate, known genetic cause, and severity of the phenotype (symptoms). In each case, we enlisted the participation of genetic foundations or organizations for information and access to patients and/or physicians for video interviews. Each disorder comprises a number of resource pages that provide in-depth information. The first "page" provides quick facts for casual browsing. Subsequent pages include detailed animations to help visitors visualize the unseen world of genes and molecules and explain the biology of the disorder. Video interviews with researchers and patients provide insiders' views on genetic disorders. Links help users find support groups and additional information.

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